Welcome to Neuroendocrine Cancer UK

Virtual Handbook

Welcome to our interactive practical toolkit for all those living with neuroendocrine cancer.

Events

Discover upcoming events, webinars, support group meetings, and fundraisers dedicated to raising awareness and supporting those affected by neuroendocrine cancer.

News

Stay up-to-date with the latest advancements, research findings, and community updates.

Subscribe to our newsletter

Stay informed with the latest updates, events, and resources by subscribing to our newsletter.

Welcome to Neuroendocrine Cancer UK. We are here to provide support, raise awareness, and offer resources for individuals affected by neuroendocrine cancer. Whether you are seeking information, looking for support, or hoping to get involved in our mission, we are here to guide you. Together, we can make a difference in the lives of those living with this often misunderstood cancer.

Overview of Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer.

Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions.

At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves.

We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease.

Latest News and Updates

National Cancer Plan England 2025 – Consultation Open

National Cancer Plan England 2025 – Consultation Open Last year, Lord Darzi’s independent investigation into the NHS, found the need to improve cancer diagnosis rates, waits and outcomes. To mark World Cancer Day, on Tuesday 4th February 2025, the Secretary of...

NICE user involvement: NICE Prioritisation Board

The National Institute for Health and Care Excellence (NICE) set up the NICE Prioritisation Board to help decide topics for guidance development see more information. NICE are looking for two people to join the board to bring a perspective of patients, people who use...

February 2025 Webinar Recording: ‘Translating Terminology within Neuroendocrine Cancer Care’

In this educational webinar, recorded in February 2025 and presented by Nikie Jervis, Director of Support Services inc. Education & Policy at Neuroendocrine Cancer UK & NMC registered nurse, the topic of terminology in neuroendocrine cancer care is discussed,...

Cancer Charities Unite to Urge UK Government to Fully Fund the National Cancer Plan

Neuroendocrine Cancer UK, together with over 50 cancer charities, has co-signed the #OneCancerVoice joint letter to The Times, calling on the UK Government to fully fund the upcoming National Cancer Plan for England. This plan is a critical opportunity to improve...

Safe Sick Pay Campaign

The Safe Sick Pay campaign is planning a national day of action on Friday 7th February, ahead of the Report Stage of the Employment Rights Bill in Parliament. The aims are to encourage MPs to vote for two amendments to the Bill: Steps towards an increase in the...

Understanding Radiation and its Role in Healthcare – Mariq Weatherley

At our live January 2025 Webinar 'Understanding Radiation and its Role in Healthcare', Mariq Weatherley, Principle Nuclear Medicine Physicist, spoke about: - What radiation is - What Molecular Radiotherapy (MRT) is and how it works - Post-therapy clearance and imaging...

HELPLINE CLOSED TUESDAY 21ST JANUARY 2025

Our Support Helpline will be closed on Tuesday 21st January 2025, due to staff training. Normal services will resume Wednesday 22nd January 2025.

Join our Team – Job Vacancies

15/01/2025 - NEW VACANCY - OPEN Fundraising Manager -   SELECT HERE TO LEARN MORE AND APPLY.  

Neuroendocrine Cancer UK Hero Awards Winners!

Neuroendocrine Cancer UK proudly launched the Neuroendocrine Cancer UK Hero Awards in September 2024, an initiative designed to honour the courage and resilience of neuroendocrine cancer patients, the unwavering dedication of medical professionals, the steadfast...

Our latest update on PERT – Dec 2024

Our latest update on PERT We have been working with our community and fellow charities to continue to seek solutions to current PERT supply issues. Our collaborative working group of charities and patient organisations continues to meet monthly - here is this...

Get Involved and Make a Difference

Join us in our mission to support those affected by neuroendocrine cancer and advance research and awareness.
There are many ways you can get involved and make a difference.

Select the image to learn more

Volunteer Become a part of our dedicated team and contribute your time and skills to support patients and families.

Fundraise Organise events, challenges, or campaigns to raise funds for neuroendocrine cancer research and support services.

Donate Your generous donations help us provide essential resources, support programs, and fund vital research initiatives.

Get in Touch

At Neuroendocrine Cancer UK, we’re always here to support you. Whether you need advice, have questions, or want to get involved, our team is ready to assist. You can contact us through our online form, by email, or over the phone. We value your input and are happy to help in any way we can. Don’t hesitate to reach out — we look forward to hearing from you.

Where would you like to visit next?

Select the image to learn more.

Symptoms

Tests

Newly diagnosed

Treatments

Your cancer site

What is neuroendocrine cancer?

Living with neuroendocrine cancer

How we can support you

NC research and our campaign work

End of life care

View and download our information, guides and factsheets

View our Neuroendocrine Cancer Virtual Patient Handbook