Welcome to Neuroendocrine Cancer UK

Virtual Handbook

Welcome to our interactive practical toolkit for all those living with neuroendocrine cancer.

Events

Discover upcoming events, webinars, support group meetings, and fundraisers dedicated to raising awareness and supporting those affected by neuroendocrine cancer.

News

Stay up-to-date with the latest advancements, research findings, and community updates.

Subscribe to our newsletter

Stay informed with the latest updates, events, and resources by subscribing to our newsletter.

Cakes for a Cause

Host a ‘Cakes for a Cause’ event with your friends and family and help us raise funds and awareness while supporting those affected by neuroendocrine cancer.

Welcome to Neuroendocrine Cancer UK. We are here to provide support, raise awareness, and offer resources for individuals affected by neuroendocrine cancer. Whether you are seeking information, looking for support, or hoping to get involved in our mission, we are here to guide you. Together, we can make a difference in the lives of those living with this often misunderstood cancer.

Overview of Neuroendocrine Cancer UK

Neuroendocrine Cancer UK is a national charity focused on supporting individuals living with neuroendocrine cancer and raising awareness of this uncommon and often misdiagnosed disease. Our mission is to provide information, support, and guidance for patients, their families, and healthcare professionals, while funding vital research to advance the understanding and treatment of neuroendocrine cancer.

Neuroendocrine cancer is a type of cancer that begins in the neuroendocrine cells, which are found throughout the body. These cells release hormones that can regulate many body functions, and when they become cancerous, they can grow in almost any organ. Neuroendocrine cancers are often slow-growing, but can also be aggressive and hard to diagnose due to their symptoms often mimicking other conditions.

At Neuroendocrine Cancer UK, we provide information on the various forms of neuroendocrine cancer, offer practical support for patients and families, and advocate for improved treatments and care pathways. We collaborate with research institutions, healthcare providers, and other cancer charities to make sure neuroendocrine cancer gets the attention it deserves.

We aim to raise awareness, provide vital patient support, and fund cutting-edge research. Through our dedicated efforts, we are committed to improving the lives of those impacted by neuroendocrine cancer and ensuring that more people understand the challenges faced by those living with this disease.

Latest News and Updates

Hero Awards 2025 – Now Live!

Neuroendocrine Cancer UK Hero Awards 2025 – Launch today!

‘SCAN’ Survey 2025 – One voice matters, thousands create change. Help improve care for NET patients!

Neuroendocrine Cancer UK is pleased to announce the launch of the International Neuroendocrine Cancer Alliance (INCA) ‘Survey of Challenges in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients’ (SCAN) 2025.

INCA Advocacy with Catherine Bouvier

Cathy facilitated a discussion with members of the INCA community from Australia, Africa, USA, India, UK & Norway to share insights and experiences, but to explore how we can collectively strengthen the voice of patients in shaping their care and the systems that...

James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer

  We are delighted to announce the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) in Neuroendocrine Cancer, jointly led by UKINETS and Neuroendocrine Cancer UK. This important national initiative aims to identify and prioritise the most...

Upcoming Nurse Webinar – 17th September 8am

Calling All Nurses: Join the Will Norman Nurse Webinar on Neuroendocrine Cancer
Join us on 17th September at 8am GMT for a free, online educational webinar focused on Neuroendocrine Cancer, brought to you in collaboration with NeuroEndocrine Cancer Australia, Neuroendocrine Cancer UK, and NeuroEndocrine Cancer New Zealand. This 2-hour session includes expert-led presentations and a live Q&A roundtable. Open to nurses only. Register now to secure your place!

Neuroendocrine Cancer UK Working with National Disease Registration Service – Get Data Out

Get Data Out We are delighted to announce that we are working, alongside neuroendocrine cancer expert clinicians, with the National Disease Registration Service (NDRS) Get Data Out programme team, to add neuroendocrine cancers to the list of cancers the NDRS...

Mounjaro® (Tirzepatide) & Neuroendocrine Cancers

We have had a number of enquiries about the use of Mounjaro® (Tirzepatide) and similar medications (e.g. Wegovy®, etc) in individuals with neuroendocrine cancer. Here we provide a summary of information currently available, which we hope will address some of the...

URGENT UPDATE 9TH JULY – Rare Cancers Bill

Update 11th July 2025 Delighted to see Dr Scott Arthur's Rare Cancers Bill pass through third reading in the House of Commons on Friday. This Bill is a crucial step forward for those living with rare and less common cancers. Thank You to everyone who contacted their...

URGENT ACTION NEEDED – CHANGES TO PIP PROPOSED

URGENT ACTION NEEDED The impact of cancer is far more than medical. With it, comes a hidden and often devastating financial burden that many do not see or expect: the ripple effect extending to family members and carers. From travelling to receive the right treatment...

PERT Shortages Survey

We know how stressful the ongoing PERT shortages are for those affected by neuroendocrine cancer (NET & NEC), pancreatic cancer (PDAC), pancreatitis, and cystic fibrosis. As charities, we are committed to monitoring the situation and sustaining pressure for this...

Get Involved and Make a Difference

Join us in our mission to support those affected by neuroendocrine cancer and advance research and awareness.
There are many ways you can get involved and make a difference.

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Volunteer Become a part of our dedicated team and contribute your time and skills to support patients and families.

Fundraise Organise events, challenges, or campaigns to raise funds for neuroendocrine cancer research and support services.

Donate Your generous donations help us provide essential resources, support programs, and fund vital research initiatives.

Get in Touch

At Neuroendocrine Cancer UK, we’re always here to support you. Whether you need advice, have questions, or want to get involved, our team is ready to assist. You can contact us through our online form, by email, or over the phone. We value your input and are happy to help in any way we can. Don’t hesitate to reach out — we look forward to hearing from you.

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Symptoms

Tests

Newly diagnosed

Treatments

Your cancer site

What is neuroendocrine cancer?

Living with neuroendocrine cancer

How we can support you

NC research and our campaign work

End of life care

View and download our information, guides and factsheets

View our Neuroendocrine Cancer Virtual Patient Handbook