Our Ambassadors, Medical Advisory Board and Collaborators

Our Ambassadors

Our ambassadors play a crucial role in advancing Neuroendocrine Cancer UK’s mission. They influence our website content by sharing valuable hints and tips for hospital visits, questions to ask, and personal experiences through stories, videos, and podcasts. Ambassadors actively raise awareness by sharing their experiences, speaking at medical conferences to amplify the patient voice, and engaging non-healthcare sectors like the pharmaceutical industry. They contribute to the professional development of healthcare providers, co-design and review patient resources, facilitate support groups, and participate in advisory boards. Ambassadors also represent us at events, staff our stands at conferences, and take part in fundraising initiatives like the Glasgow Kiltwalk and Craig’s Firewalk Challenge.

If you’re passionate about making a difference, have a personal connection to neuroendocrine cancer, and are eager to raise awareness and funds, join our dedicated ambassador team!

Select here to apply

Alan

Patient Ambassador

Select here to read Alan’s stories:
– A Businessman’s Blog.
– From Diagnosis to YouTube.

Select to listen to Alan’s podcast: The Importance of Self-Advocacy while Living with Neuroendocrine Cancer.

Bethann

Patient Ambassador

Select to read Bethann story:
– Neurodivergence and Neuroendocrine Cancer.
– The Cancer That Just Keeps Giving.
– Being listened to.

Carolyn

Patient Ambassador

Select to read Carolyn’s stories:
– Long Time Living with Lanreotide.
– Having a Cancer That No One Had Heard of.
– Radioligand (PRRT) – Cycles 5 & 6.

Select to listen to Carolyn’s podcast: Neuroendocrine Cancer Treatments: Insights from Jane and Carolyn.

Chris

Patient Ambassador

Select to read Chris’s story:
– Pushing for a Pathway.

Chrissie

Patient Ambassador

Select to read Chrissie’s story:
– My NETS Journey … to Liver Transplant and Beyond.

Select to listen to Chrissie’s podcast: Mind Matters: Exploring Mental Health and Coping Strategies in Neuroendocrine Cancer.

Craig

NCUK Staff member and Patient Ambassador

Select to read Craig’s story:
– Fix my Broken Heart.

Select to watch Craig’s videos:
– Living the Life of a Neuroendocrine Cancer Patient.

Debra

Patient Ambassador

Select to read Debra’s story:
– But Debra, you look so well.
– Debra’s Story.

Select to listen to Debra’s podcast: Neuroendocrine Cancer Symptoms Prior to Diagnosis – Debra and Michelle.

Kate

NCUK Staff member and Patient Ambassador

Select to read Kate’s story:
– Coping with Sc-Anxiety.
– Living with Lanreotide.

Select to watch Kate’s videos:
– Neuroendocrine Cancer Research – The Patients’ Perspective.
– Neuroendocrine Cancer Clinical Trials & Research: The Importance of the Patient’s Perspective.
– Understanding Neuroendocrine Cancer Research.

Maria

Patient Ambassador

Select to watch Maria’s video:
– Living with Neuroendocrine Cancer, Newly Diagnosed.

Lisa

Patient Ambassador

Select to read Lisa’s story:
– Acceptance, Slowing Down and Coming to Terms with my Life Now.

Select to listen to Lisa’s podcast:
– The Importance of Self-Advocacy while Living with Neuroendocrine Cancer.

Maxine

Patient Chair Ambassador

Select to read Maxine’s story:
– Maxine’s Story, Not the Life We Planned.
– Stable: So, is that it?

Select to listen to Maxine’s podcasts:
– Neuroendocrine Cancer Treatments – The Patient Experience.
– Neuroendocrine Cancer Symptoms Prior to Diagnosis – Maxine & Simon.

Polly

Ambassador - Supporting a loved one with Neuroendocrine Cancer

Select to read Polly’s story:
– Compassion Fatigue.
– From Business Analyst to Caregiver Advocate.

DISCLAIMER:
Neuroendocrine Cancer UK does not endorse or recommend commercial products, processes or services. Any correspondence undertaken by any Ambassadors representing Neuroendocrine Cancer UK does not replace medical advice in any way. If medical advice is required, please contact a medical professional or use our Helpline Number 0800 434 6476. Views are those of the Ambassadors only. Any verbal or written comments- cannot be construed as ‘advice’ or endorsement.

Neuroendocrine Cancer UK also cannot authorise the use of copyrighted materials published on linked, external websites. Users must request authorisation from the sponsors of those websites and give credit if named.

Neuroendocrine Cancer UK Medical Advisory Board

Our medical advisory board is a group of specialists, from surgeons to dieticians, who all have a wealth of experience working with neuroendocrine cancer.

Our advisors are on hand to answer any of your queries that we can’t answer for you immediately.

Professor Martyn Caplin

Professor of Gastroenterology & Neuroendocrine

Dr Amy Eccles

Radionuclide Radiologist

Mr Stephen Fenwick

Consultant Hepatobiliary and General Surgeon

Mr Samuel J Ford

Consultant Surgeon

Professor Andrea Frilling

Professor of Surgery and Chair in Endocrine Surgery

Dr Alex Graveling

Consultant Physician

Wendy Martin

Lead Neuroendocrine Clinical Nurse Specialist

Professor John Newell-Price

Professor of Endocrinology

Professor Mark Pritchard

Gastroenterologist

Dr Debashis Sarker

Consultant Medical Oncologist

Dr Rohini Sharma

Consultant Medical Oncologist

Professor Raj Srirajaskanthan

Consultant Gastroenterologist

Dr Richard Steeds

Consultant Cardiologist

Mr Mike Tadman

Neuroendocrine Cancer Clinical Nurse Specialist

Professor Chrissie Thirwell

Mireille Gillings Professor of Cancer Genomics

Tara Whyand

Specialist Dietitian

Kym Winter

Psychotherapist and Counsellor

Irene Wotherspoon

Advanced Clinical Nurse Specialist

Our Counsellors

We have teamed up with Rareminds, a not-for-profit Community Interest Company (CIC), providing online counselling and well-being services for rare disease charities since 2014.

The Rareminds counsellors offer support during tough times or in making sense of present difficulties that may stem from past experiences. In so doing, it can often be possible to find ways to understand and manage complicated feelings or situations differently. They can also help you with strategies and techniques for managing particular issues, such as panic attacks, fatigue, and anxiety around scans/treatments.

Who We Work With

As the saying goes, “No man is an island.” At Neuroendocrine Cancer UK, we understand that serving our community and thriving as an organisation requires collaboration. We are proud to partner with leading organisations, including INCA, ENETS, UKINETS, Maggie’s, AMEND, ACC Support UK, and Cancer52, among others.

Interested in working with us? Get in touch.