Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
OPEN Health Want to Hear from You – Research Study
OPEN Health are conducting interviews to understand the experiences of people living with neuroendocrine tumours of the gastrointestinal system and pancreas (GEP-NETs). Select here to download the PDF.
New screening programme identifies clinical trial opportunities for neuroendocrine cancer patients
- We are often told by our community that it is difficult to find information on clinical trials, and that the information around clinical trials can be difficult to interpret and understand if you don't have a scientific or medical background. Even when information...
Rarecan Seeks Your Input on Genetic Analysis Services
Rarecan, in collaboration with its partners, is exploring the potential for offering genetic analysis services to aid in cancer treatment decisions and clinical trial eligibility. Advancements in technology have made genetic analysis of tumors increasingly...