Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Pancreatic Enzyme Replacement Therapy (PERT) Update – Creon®, Nutrizym® and Pancrex®.
Pancreatic Enzyme Replacement Therapy (PERT) - product brands: Creon®, Nutrizym® and Pancrex®. Many of you are aware that there has been some variability and inconsistency in the delivery and availability, at local level, of PERT. This has led to some people either...
Goblet Cell Adenocarcinoma of the Appendix (GCA)
Some of you may have seen an article published in the Mail Online (19th March) about a young mum, diagnosed with Goblet Cell Adenocarcinoma of the Appendix. Our thoughts are with this young woman and her family. However, we would like to reduce any confusion or...
Primary Care Society for Gastroenterology Podcast Episode on Neuroendocrine Cancer
As part of our ‘Spotlight on Neuroendocrine Cancer’ campaign, we aim to raise awareness of neuroendocrine cancer among healthcare professionals. We are delighted that this month the Primary Care Society of Gastroenterology has featured neuroendocrine cancer on their...