Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
Neuroendocrine Cancer UK Remembers – Social Media Campaign
🕊️ Honouring National Grief Awareness Week: Share Your Memories 🕊️ - As we observe National Grief Awareness Week, we invite our Neuroendocrine Cancer UK community to join us in celebrating the lives of our loved ones who have passed. ❤️ Share a photo of your...
New Podcast: Cancer Genomics: A Conversation with Professor Thirlwell
In this week's podcast, we delve into genomics research with Professor Chrissie Thirlwell, a cancer genomics and Head of the Medical School at the University of Bristol. She is also a Consultant Medical Oncologist, Secretary of UKINETs, and Co-Chair of the NET...
Raising Awareness for Pancreatic Cancers
Raising awareness of Cancers of the Pancreas - choosing wording advisedly - because not all cancers are the same. Awareness-raising seeks to inform and educate people - bringing an issue or subject to the awareness - of a specific group of people or the wider...