Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
“Not Just NE Cancer” Podcast Recognised among Top 40 Cancer Podcasts
- We are thrilled to announce that Neuroendocrine Cancer UK's podcast, "Not Just NE Cancer," has achieved a remarkable milestone by being recognised as one of the Top 40 Cancer Podcasts by Feedspot, a content discovery platform. This recognition underscores our...
Neuroendocrine Cancer UK Launches Practice-Changing Grants
Neuroendocrine Cancer UK is thrilled to announce the launch of our Practice-Changing Grants initiative, which is part of our Advancing Research campaign. The grants are designed to identify practical solutions that significantly enhance the well-being and experiences...
*New Patient Story* ‘That Fraudulent Feeling’ by Simon
In a candid and inspiring update, Simon Walsh, a Neuroendocrine Cancer UK Ambassador, reflects on his pathway since his decision to retire early due to an unexpected cancer diagnosis. Simon, who was diagnosed with cancer two and a half years ago, questions the concept...