Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Due to the increasing incidence and prevalence of neuroendocrine tumors (NETs), there is a need to assess any gaps in awareness and care. A survey was undertaken in 2017 to identify perceived unmet needs from the perspectives of patients/families, patient advocates and health care professionals (HCPs). The survey consisted of 33–37 questions (depending on type of respondent) across four areas: information, care, treatments and research.
Recent News
CABINET Phase III trial update
Final results, published by Ipsen, Monday 16th September. The number of people newly diagnosed with NETs is believed to be rising due to increasing awareness and better methods of diagnosis, with approximately 35 in every 100,000 people currently living with NETs...
PERT webinars for HCPs: including CNSs, GPs and Pharmacists
Healthcare Professional Webinars: PERT and what to do during current shortages (Please note: that these webinars are specifically for healthcare professionals: including hospital clinicians/prescribers, GPs, CNSs & both hospital and community pharmacists) Many of...
Modernising Support for Independent Living: The Health and Disability Green Paper
In April this year, the government published a Green paper consultation on proposals for PIP reform. The paper was introduced by The Rt Hon Mel Stride MP in April 2024: Former Secretary of State for Work and Pensions: “We want to ensure that we have a welfare system...