Rare : not widely known; not frequently used or experienced; uncommon or unusual. “The mantra of ‘hear hooves, think horse not zebra’ is greatly contributing to diagnostic delays and poor patient experience” says Dr Lucy McKay, founder of Medics4RareDiseases. “The...
Sex Differences in Survival from Neuroendocrine Neoplasia in England 2012 & 2018: A Retrospective, Population-Based Study : published 20th March 2023. A retrospective, population-based study comparing overall survival (OS) between males and females with...
**Inspirational Volunteer Enola Wright Named Coronation Champion** April 25, 2023 – Enola Wright, a dedicated volunteer from West Mersea, Essex, has been recognised as one of the 500 Coronation Champions for her tireless work in serving the Insulinoma community. The...
In a speech at the Francis Crick Institute on World Cancer Day 2022 (4 February), the then Health and Social Care Secretary, Rt Hon Sajid Javid MP, declared ‘a war on cancer’ and launched a call for evidence to underpin an ambitious 10-Year Cancer Plan for England....
INCA has launched the new Research Section on www.incalliance.org INCA is committed to empower NET patients to bring robust participation in clinical trials and to play an active role in shaping patient-centered research. INCA seeks to advocate for patient involvement...
