by Leanne Talbot | Jun 18, 2024 | Patient Stories, Patient Stories & Experiences
Neurodivergence is wider than autism, but this piece specifically refers to autism. – Autism is a spectrum disorder, so it is variable: no one with autism experiences being autistic in the same way, so although this is my experience, and there are... by Leanne Talbot | May 15, 2024 | Patient Stories
A ‘carer’s’ experience is not the same as a patient’s. It can’t be. But the fallout from the stress and anxiety can be just as overwhelming. There have even been times when I’ve experienced both burnout and compassion fatigue. – My name is Polly Bell and... by Leanne Talbot | Apr 10, 2024 | Patient Stories
Name: Carolyn Neuroendocrine Cancer Site: Bowel Hospital: The Royal Free – Carolyn’s Story My name is Carolyn Evans, and in August 2005, I was in hospital recovering from bowel surgery when a nurse came up to me and said: “Don’t stop eating your lunch,... by Leanne Talbot | Apr 4, 2024 | Patient Stories
I’m Polly, 68 years old. In a former life I was a Business Analyst and IT Project Manager. Taking early retirement in my late 50s, it was to be a venture into the unknown but what followed was not quite what I had in mind. – So how I got here…. I’m a partner to... by Leanne Talbot | Jan 23, 2024 | Patient Stories
– Many of you will know or will have read my previous blogs about my husband Ian’s story and how living with neuroendocrine cancer and Carcinoid Heart Disease have brought so many irrevocable changes to our lives since his diagnosis in 2012. Ian sadly passed... by Clare Gerrard | Sep 27, 2023 | News, Patient Stories
I first met Barrie, not long after I joined Neuroendocrine Cancer UK, about 7 years ago, at a Natter group: one he co-founded and facilitated in Letchworth Garden City. He’d been diagnosed with Neuroendocrine Cancer in 2008, and first became aware of and involved with... 
