A ‘carer’s’ experience is not the same as a patient’s. It can’t be. But the fallout from the stress and anxiety can be just as overwhelming. There have even been times when I’ve experienced both burnout and compassion fatigue. – My name is Polly Bell and...
Name: Carolyn Neuroendocrine Cancer Site: Bowel Hospital: The Royal Free – Carolyn’s Story My name is Carolyn Evans, and in August 2005, I was in hospital recovering from bowel surgery when a nurse came up to me and said: “Don’t stop eating your lunch,...
I’m Polly, 68 years old. In a former life I was a Business Analyst and IT Project Manager. Taking early retirement in my late 50s, it was to be a venture into the unknown but what followed was not quite what I had in mind. – So how I got here…. I’m a partner to...
– Many of you will know or will have read my previous blogs about my husband Ian’s story and how living with neuroendocrine cancer and Carcinoid Heart Disease have brought so many irrevocable changes to our lives since his diagnosis in 2012. Ian sadly passed...
I first met Barrie, not long after I joined Neuroendocrine Cancer UK, about 7 years ago, at a Natter group: one he co-founded and facilitated in Letchworth Garden City. He’d been diagnosed with Neuroendocrine Cancer in 2008, and first became aware of and involved with...
Name: Kate Neuroendocrine Cancer site: Tail of pancreas and secondaries in the liver KATE’S STORY Hello, my name is Kate and I have been living with neuroendocrine cancer for 13 years. I feel lucky to be here to see my family grow up. It took three visits...