Richard’s NET journey

From the outset, my treatment plan has been clearly laid out and what I have been told was going to happen has happened.  Initially I was advised that I would start on Octreotide injections, have surgery and an embolization procedure followed up by a course of...

Sharon’s NET story

My NET story Have you ever had certain symptoms and “self diagnosed” yourself? I have and it nearly killed me! Years ago, I began getting diarrhoea, I did actually go to the Dr’s this time. I was referred to the hospital, had tests and they found I had some cyst,...

Lyn’s poem about being a NET patient

What does it mean to you? What does it mean to you…  … the Nurse Practitioner who shrugged her shoulders when I begged her for help?  … the consultant who prescribed me anti-depressants? … the consultant who advised me to drink mint...