Support for Healthcare Professionals

Working together to improve patient care and increase awareness of these rare cancers to achieve an earlier diagnosis, access to best care and treatments, and ultimately to improve the patient experience, and outcomes.

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Latest News, Updates and Events

Molecular Radiotherapy for Neuroendocrine Cancers in the UK Conference
Friday, 8 November 2024

MARRIOTT HOTEL, REGENTS PARK, LONDON, NW3 3ST
Select here to view the event agendas.

EVENT FULLY BOOKED

If you have any questions regarding the event, please get in touch.

Grant Application now Open

We are pleased to announce the 2024 round of the Neuroendocrine Cancer UK pump-priming grants in collaboration with UKINETS funded by the Neuroendocrine Cancer UK community. The aim of this grant is to provide pump-priming funds to support research projects designed to improve outcomes for patients with neuroendocrine cancer.

PERT-Webinars

A recent survey revealed that 87% of neuroendocrine cancer patients prescribed PERT have experienced shortages. In partnership with Pancreatic Cancer UK, Pancreatic Cancer Action, Cystic Fibrosis Trust, and Guts UK, we hosted two free webinars addressing this issue. The September webinars provided guidance on managing PERT shortages, offering practical tips to support patients. One session was tailored for Clinical Nurse Specialists and Dietitians, while the other focused on GPs and pharmacists. Both recordings are available to watch now. Further updates can be found on our News page and the Specialist Pharmacy Service website.

Support for You

What is Neuroendocrine Cancer?
Practical guides tailored for healthcare professionals to support patient identification.

Supporting your Patients
Learn more about financial support for your patient and explore our range of support materials to order and give to your patients.

Research Grants
Discover our research grant opportunities.

Mental Health Support for your Patients
Practical communication tips to support conversations about your patients’ mental health.

Professional Development Courses

View courses on neuroendocrine cancer diagnosis, treatment, and management.

Neuroendocrine Cancer Guidelines

Access up-to-date guidelines and protocols for neuroendocrine cancer.

Upcoming Events

CONFERENCE

Molecular Radiotherapy for Neuroendocrine Cancers in the UK

Event Details
Date: Friday, 8th November 2024
Venue: Marriott Hotel, Regents Park, London, NW3 3ST

Morning Session: Discussing the Existing Challenges
Time: 09:00 – 13:00

Agenda Highlights:
Challenges with Current Treatments and Delivery
Broadening Current Applications
Industry Insights and New Horizons
Panel Discussion and Networking

Select here to view the full AM session agenda
Select here to register for the AM session

CONFERENCE

Molecular Radiotherapy for Neuroendocrine Cancers in the UK

Event Details
Date: Friday, 8th November 2024
Venue: Marriott Hotel, Regents Park, London, NW3 3ST

Afternoon Session: Focus on Education and Training
Time: 13:00 – 16:30

Agenda Highlights:
Introduction to Molecular Radiotherapy (MRT)
Clinical Applications and Case Studies
Patient Selection and Safety Considerations
Interactive Panel Discussion and Q&A

Select here to view the full PM session agenda
Select here to register for the PM session

Get involved

We take our responsibility to provide accurate and appropriate information and support to patients and all within our neuroendocrine cancer community very seriously – we are here to work alongside the people who contact us, our community, and our expert healthcare colleagues across the UK.

We are very grateful for the generous time given, support, and input from our Clinical Expert Advisory Team, Neuroendocrine Cancer UK ambassadors, Trustee Board (which includes healthcare professionals), and our patron Professor Martyn Caplin.

If you would like to get involved – in information development, educational events, advocacy initiatives, or share best practices, research/study plans and/or results – contact us here.

We are Proud Members

We are proud members of Cancer52, International Cancer Alliance (INCA) , European Patient Advocacy Group (EPAG) for European Reference Networks (ERNs) for Rare Endocrine Cancers ( EURACAN), UK & Ireland Neuroendocrine Tumour Society (UKINETs), European Neuroendocrine Tumour Society (ENETs) , European Society of Endocrinology (ECE) & European Society of Medical Oncology (ESMO).

And Professionally Collaborate with fellow patient organisations:

  • Neuroendocrine Cancer UK and AMEND joint venture supports adrenocortical cancer patients through ACC Support UK.
  • Neuroendocrine Cancer UK and Maggie’s Centres joint venture supports anyone affected by Neuroendocrine Cancer through part of our Natter initiative.
  • Neuroendocrine Cancer UK is an active member of Cancer52 , an organisation that works alongside CRUK and PHE to influence national cancer strategies and service provision.

Symptoms

Tests

Newly diagnosed

Treatments

Your cancer site

What is Neuroendocrine Cancer?

Living with Neuroendocrine Cancer

How we can support you

NC research and our campaign work

End of life care