NET Patient Foundation Research Abstracts
NPF and NCRAS Public Health England partnership project has been compiling statistics on the incidence, prevalence and survival of NET patients in England using English cancer registry data, with an aim to also access Scottish, Welsh and Northern Irish cancer registry data to also get UK wide statistics.
We carried out four pieces of research in 2017, abstracts for which can be found below:
- The Incidence and Prevalence of Neuroendocrine Tumours in England.
- The 1- year survival rates for Neuroendocrine tumour patients in England.
- Metachronus primary cancers in Neuroendocrine tumour patients.
- Neuroendocrine Tumour patients experiences of support in the community setting across the treatment trajectory.
Presenting symptoms and delay in diagnosis of gastrointestinal and pancreatic Neuroendocrine tumours
Ileocolonic neuroendocrine tumours identified in the English bowel cancer screening programme
Self-reported side effects in neuroendocrine tumour (NET) patients prescribed somatostatin analogues – the role for specialist dietitians and nurses
- Assess what symptoms/side effects patients report on SSA’s.
- Assess the severity of symptoms/side effects reported by patients whilst on SSA’s.
- Produce recommendations on how to deal with symptoms commonly experienced by patients on SSA’s.
This study has been accepted to be published in the British Journal of Nursing.
Recent News
CABINET Phase III trial update
Final results, published by Ipsen, Monday 16th September. The number of people newly diagnosed with NETs is believed to be rising due to increasing awareness and better methods of diagnosis, with approximately 35 in every 100,000 people currently living with NETs...
PERT webinars for HCPs: including CNSs, GPs and Pharmacists
Healthcare Professional Webinars: PERT and what to do during current shortages (Please note: that these webinars are specifically for healthcare professionals: including hospital clinicians/prescribers, GPs, CNSs & both hospital and community pharmacists) Many of...
Modernising Support for Independent Living: The Health and Disability Green Paper
In April this year, the government published a Green paper consultation on proposals for PIP reform. The paper was introduced by The Rt Hon Mel Stride MP in April 2024: Former Secretary of State for Work and Pensions: “We want to ensure that we have a welfare system...