NOVEMBER 2024
01/11/2024
Urgent action needed to improve the survival rate of people with rare cancers, campaigners say
OCTOBER 2024
19/10//2024
‘Doctors put my symptoms down to allergy – now I’ve got incurable cancer’
It took four years for a cancer sufferer to get treatment for his very rare disease and by the time he did it had become incurable and inoperable.
Saying he was going to kill himself was the only way a cancer sufferer could get doctors to listen to him after a four-year battle for a correct diagnosis.
Dave Howard was advised to make drastic changes to his diet after he began experiencing symptoms including a red, purpley rash, increased heart rate, not being able to breathe, and feeling like his hands and feet are swelling and his eyes are popping out.
The doctors he saw thought these issues were all caused by a food allergy, with one medic even suggesting it was “all in his head”.
SELECT HERE TO READ THE FULL ARTICLE
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OCTOBER 2024
15/10//2024
BBC NEWS: Ruth Hitchcock started swimming daily last October after her husband was diagnosed with a rare cancer
A woman in Cornwall who completed a year of swimming to raise awareness of a rare cancer has decided to extend her challenge to 1,000 days.
Ruth Hitchcock started swimming daily on 9 October 2023 after her husband was diagnosed with neuroendocrine cancer earlier that year.
She invited people around the world to take part in the “daily dip for Dave”, and has since raised more than £16,000 for charity, external, finishing her 365th swim to the applause of more than 100 others at Gyllyngvase beach, Falmouth, on Saturday.
SELECT HERE TO READ THE FULL ARTICLE.
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JUNE 2024
05/06/2024
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Image – The Sun
‘TOUGHEST FIGHT OF MY LIFE’
I thought my back hurt from sitting badly at my desk at work – now I’ve got incurable cancer
A MUM who thought her back pain was from sitting at a desk all day was later diagnosed with incurable cancer.
Izzie Collins spent months putting her constant aches down to poor posture and being stationary for too long.
But in April 2024, the 30-year-old was delivered the life-changing news that she has stage four neuroendocrine tumours.
These develop in cells of the neuroendocrine system and affect around 6,000 people every year in the UK.
SELECT HERE TO READ THE FULL ARTICLE.
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03/06/2024
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Witney man to take on marathon with trolley and mannequin
A Witney man who was diagnosed with a rare form of cancer is set to take on a unique marathon for charity.
Steve Rance, who was diagnosed with Neuroendocrine Cancer in 2021, has decided to walk 26.2-miles around his hometown of Witney.
He will push a shopping trolley carrying ‘Cedric,’ a mannequin complete with flying goggles and a moustache, on June 8.
He is raising funds for Neuroendocrine Cancer UK and Cancer Research UK, and has already amassed £3,183.72 of his £5,000 goal.
Read the full article here: https://www.oxfordmail.co.uk/news/24352008.witney-man-take-marathon-trolley-mannequin/
Donate here: https://www.givewheel.com/fundraising/3172/steve-cedric-are-off-their-trolley/
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MAY 2024
16/05/2024
NHS approves ‘invaluable’ treatment for liver cancer which can help speed up recovery
Campaigners welcome decision by National Institute for Health and Care Excellence
An “invaluable” treatment for liver tumours which experts say can help speed up recovery times and provide better quality of life for patients has been approved for use by the NHS.
Cancer charity Planets has welcomed the decision by the National Institute for Health and Care Excellence (NICE) to make selective internal radiation therapy (SIRT) available for patients with neuroendocrine tumours (NETs) in the liver.
SELECT HERE TO READ THE FULL ARTICLE.
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MARCH 2024
07/03/2023
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Hollywood producer who worked on action films starring Bruce Willis and John Travolta passes away after neuroendocrine cancer battle
Sean Stone dies aged 31: Hollywood producer who worked on action films starring Bruce Willis and John Travolta passes away after cancer battle
- Stone passed away on Tuesday at Robert Wood Johnson University Hospital in New Brunswick, New Jersey
- He was diagnosed with metastatic neuroendocrine cancer of the colon in July
- Stone produced upcoming John Travolta film Cash Out and its sequel
SELECT HERE TO READ THE FULL ARTICLE.
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JANUARY 2024
4 January 2024 – 
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Ruth Hitchcock Daily Dip for Dave Falmouth beaches
DECEMBER 2023
1 December 2023
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NBC host Antonia Hylton, 30, reveals she was diagnosed with rare cancer after IGNORING her symptoms for TWO YEARS – as she urges others not to dismiss warning signs – Daily Mail
SELECT HERE TO READ THE FULL ARTICLE
NOVEMBER 2023
– Lorry driver Alex Watson from Tunbridge Wells credits a rare, symptomless tumour for saving his life, as it led to the early detection of neuroendocrine cancer in his pancreas. Initially misdiagnosed with allergies, Alex’s condition worsened, revealing the cancer through jaundice. The tumor, although rare, caused noticeable symptoms due to its location, prompting timely medical attention. After a Whipple procedure in October, Alex is in recovery and plans to host a fundraising music event for Neuroendocrine Cancer UK. His story emphasises the importance of seeking medical help when things don’t feel right. Alex is fundraising for Neuroendocrine Cancer UK – You can support his event here: https://www.gofundme.com/f/alexs-neuroendocrine-cancer-charity-music-event–
SELECT HERE TO READ THE FULL ARTICLE.
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“Soles brave coals for cancer charity”
A dad from Elderslie on a mission to raise awareness about the rare cancer that’s been afflicting him for a decade marshalled a troupe of almost 100 brave volunteers to step across hot coals for charity. Ambassador Craig Speirs and some of the Neuroendocrine Cancer UK team took on an exciting albeit terrifying challenge of firewalking this week, raising a whopping £43,000 for Neuroendocrine cancer research. Craig let the charge, bravely stepping across the hot coals first. “It was important that I step up and lead the way across,” said Craig. “As I stood there looking at the fire, I went back to what we had been taught. What was my reason to cross the fire? Let’s break that barrier and walk across something that people have been telling me for months that i’m crazy for doing it.” ——————————————————————————————————- 15th November 2023
Leamington Spa cancer charity raises £35,000 with virtual trek across UK
Over 50 dedicated participants have collectively covered almost 50,000 miles through walking, running, and cycling, symbolically traversing the length of the nation. The journey began in Scotland, winding through Northern Ireland, Wales, and England, with participants stopping at each neuroendocrine cancer centre and clinic along the way. – 
Neuroendocrine Cancer ranks as the 10th most prevalent cancer in England and the second most common cancer of the gastrointestinal tract. Shockingly, from 1995 to 2018, the incidence of Neuroendocrine Cancers in England surged by an astonishing 371%, surpassing the 116% rise in all other cancers combined.
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JULY 2023
5 July 2023 “Elderslie man who is battling rare cancer to take on challenge”
Neuroendocrine Cancer UK’s Ambassador, Craig Speirs is fighting against a rare form of cancer known as neuroendocrine cancer. He aims to raise £100,000 to support others who suffer from the same condition. Through various charity events, including two Kiltwalks, Craig has already gathered £54,000. He plans to host a firewalk at Johnstone Bowling Club to raise the remaining amount. Neuroendocrine cancer affects only seven out of 100,000 people, and Craig has been living with it for a decade. He has undergone two heart operations and relies on weekly nurse visits for medication assistance. Craig shares his experiences at medical conferences, participates in support groups, and receives treatment at the Beatson West of Scotland Cancer Centre. As there is no cure for his stage four cancer, Craig hopes to contribute to research efforts for neuroendocrine cancer. Having left his job due to the demanding treatment, his main focus is spending more time with his 14- and seven-year-old children. The firewalk is scheduled for November 10, coinciding with International Neuroendocrine Cancer Awareness Day. Craig and his friends aim to recruit 100 participants to walk on hot coals, raising awareness and funds for the cause.
READ THE FULL ARTICLE HERE: https://www.the-gazette.co.uk/news/23634572.elderslie-man-battling-rare-cancer-take-challenge/?ref=wa
The Race of Remembrance is motorsport’s tribute to the fallen and a chance for veterans to team up for a common cause. It’s a truly special event, over a special weekend, in which Nik Berg was honoured to take part. Read the full article here.
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JULY 2022
Sun, 10 July 2022 “Cancer charity exposes ‘scandal’ of patients being denied travel insurance”.
Fantastic to see PLANETS continue the fight for fair travel insurance for the neuroendocrine community. For years there has been inequity, despite work done to educate insurance companies, talks given, and explanations of neuroendocrine shared… please sign this petition and maybe this time we can see some positive change. Read the full article here. 
A retired firearms officer who was diagnosed with a rare type of cancer is giving his backing to a new appeal which aims to help others in his position.
Read the full article here.