Gathering data is vital, and Neuroendocrine Cancer UK actively participates in numerous research projects both nationally and internationally, ensuring that the patient perspective is central. Below, you’ll find a snapshot of some of our ongoing work, including notable headliner research papers. We extend our heartfelt thanks to each person who completes a questionnaire or participates in a survey. Your input is invaluable, providing a platform to amplify your voice and influence positive change.

If you’re interested in contributing to any of our research initiatives, please don’t hesitate to reach out and get involved.

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Published: 2022

Published: 2021

Sex differences and survival of neuroendocrine neoplasia in England 2012-2018.

Published: 2021

Patient Perspectives, from Diagnosis Through Treatments & Beyond.

Published: 2020

Evaluating cost-effectiveness in the management of neuroendocrine neoplasms.

Published: 2020

Health-related quality of life in neuroendocrine neoplasia: a critical review.

Published: 2020

COVID & My Care Report.

Published: 2019

Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.

Published: 2019

Impact of neuroendocrine morphology on cancer outcomes and stage at diagnosis: a UK nationwide cohort study 2013–2015.

Published: 2018

Presenting Symptoms and Delay in Diagnosis of Gastrointestinal and Pancreatic Neuroendocrine Tumours.

Published: 2018

Delays and routes to diagnosis of neuroendocrine tumours.

Published: 2017

Widening the NET.

Published: 2015

Where is Chapter 10?