Gathering data is vital, and Neuroendocrine Cancer UK actively participates in numerous research projects both nationally and internationally, ensuring that the patient perspective is central. Below, you’ll find a snapshot of some of our ongoing work, including notable headliner research papers. We extend our heartfelt thanks to each person who completes a questionnaire or participates in a survey. Your input is invaluable, providing a platform to amplify your voice and influence positive change.
If you’re interested in contributing to any of our research initiatives, please don’t hesitate to reach out and get involved.
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Published: 2024
Current and emerging strategies for the management of advanced/metastatic lung neuroendocrine tumors.
Published: 2022
Incidence and survival of neuroendocrine neoplasia in England 1995–2018: A retrospective, population-based study.
Published: 2022
Published: 2022
The impact of COVID-19 on the management of neuroendocrine tumors (NETS): An international NET CONNECT survey of NET patients and healthcare professionals treating net patients.
Published: 2021
Practical recommendations for the management of patients with gastroenteropancreatic and thoracic (carcinoid) neuroendocrine neoplasms in the COVID-19 era
Published: 2021
Sex differences and survival of neuroendocrine neoplasia in England 2012-2018.
Published: 2021
Patient Perspectives, from Diagnosis Through Treatments & Beyond.
Published: 2021
The Role of Patient Support Groups in Neuroendocrine Neoplasms.
Published: 2020
Evaluating cost-effectiveness in the management of neuroendocrine neoplasms.
Published: 2020
Health-related quality of life in neuroendocrine neoplasia: a critical review.
Published: 2020
COVID & My Care Report.
Published: 2020
Barriers to Diagnosis Report.
Published: 2019
Unmet needs in the international neuroendocrine tumor (NET) community: Assessment of major gaps from the perspective of patients, patient advocates and NET health care professionals.
Published: 2019
Impact of neuroendocrine morphology on cancer outcomes and stage at diagnosis: a UK nationwide cohort study 2013–2015.
Published: 2018
Presenting Symptoms and Delay in Diagnosis of Gastrointestinal and Pancreatic Neuroendocrine Tumours.
Published: 2018
Prevalence of self-reported side effects in neuroendocrine tumour patients prescribed somatostatin analogues.
Published: 2018
Delays and routes to diagnosis of neuroendocrine tumours.
Published: 2017
Widening the NET.
Published: 2015
Where is Chapter 10?
Published: 2015
Patient Experience Survey.