Surveys
Shape the future of Neuroendocrine Cancer UK
(Approx. 15 minutes to complete)
At Neuroendocrine Cancer UK we want to ensure we continue to meet your needs and support you in the way you want to be supported. Please complete our survey to allow us to do this.
Genetic Testing of Tumours
RareCan and partners are exploring genetic analysis services to aid cancer treatment decisions and trial eligibility. This accessible option aims to provide insights into personalised treatment options. Your input is crucial – complete the survey to help assess the feasibility of this service.
Research Studies
CommonGround
Online Peer Support in Long-Term Conditions: A team at King’s College London has collaborated with individuals living with long-term physical health conditions to develop a new online peer support platform. They are eager to gather feedback on the new intervention, including likes and dislikes. Interested in participating? Sign up before the end of May to experience it firsthand.
The NELMAS trial
(Study Title: NELMAS – An international multi-centre, stratified, open, randomized, comparator-controlled, parallel-group phase II study comparing adjuvant treatment with 177Lu-DOTATATE (Lutathera®) to best supportive care in patients after resection of neuroendocrine liver metastases) is now open for recruitment at Imperial College London. The trial is in set up process at numerous sites in UK and Ireland. Sites in EU will follow as soon as the EMA Ethics Approval for EU sites is in place. This is the first phase II surgical trial and the first RCT in adjuvant setting.
Note. The Christie Hospital is also in the process of setting up participation in NELMAS and will be led by PI Melissa Frizzerio. Date October 2024.
Petitions
Select the image to learn more.
One Cancer Voice
Petition to the Prime Minister to demand the UK Government keeps its commitment to transform cancer care and services.
Share Your Views or Become Part of a Working Group
We often look for people with experience of Neuroendocrine Cancer to volunteer and take part in focus group discussions and surveys in order to gain insight into patients’ experience of their treatment and care. NCUK strives to be an evidenced-based organisation and your insights allow us to offer real-world evidence when we need it.