Faces of NCUK
Be part of a like-minded community where you can share your own thoughts and feelings about Neuroendocrine Cancer.
Around 36,000 people are affected by Neuroendocrine Cancer in the UK, with over 5,000 people newly diagnosed each year. That is more than 13 people a day. For many the first time they will have heard about Neuroendocrine Cancer will be the day they receive their diagnosis.
Faces of NCUK is here for you to be part of a huge community of like minded people, and to share your own thoughts and feelings about Neuroendocrine Cancer. Whoever you are – a Neuroendocrine Cancer patient, a supporter, a friend, healthcare professional or a loved one – you have the power to take action and make your voice count.
By talking about your experiences, you can help us tell powerful stories that raise awareness and create a wider and deeper conversation about Neuroendocrine Cancer across the UK. People who’ve shared their story often find it a really positive experience and an opportunity to make a real difference for people living with Neuroendocrine Cancer, and their families.
Whether you are living with Neuroendocrine Cancer, or supporting a loved one who has been diagnosed, we’d love to hear from you.
How can you get involved?
All you need to do at this stage is click on the ‘Share your story’ button below and answer some questions, giving us as much information as you can and feel comfortable with. If we need more details, a member of the Stories team will get in touch to have a chat.
Thank you.
The stories here have been shared by Neuroendocrine Cancer patients, supporters, healthcare professionals and friends and colleagues of NCUK. We will constantly update this page, so please be sure to visit it again.
For some this has been the first time they have written about their experience and where they are now. Patients share their experiences of how they became ill, their treatment, and their road to recovery. Supporters and Healthcare professionals share their experiences. Please note that while most stories end on a positive note, others reveal insights into the very difficult roads that many Neuroendocrine Cancer patients face.
Please note that the stories and opinions posted in the Faces of NCUK are those solely of the authors and contributors of the stories. They do not reflect the opinions of Neuroendocrine Cancer UK.
Supporter, Lucy has written a song for her Dad.
From Frightened to Enlightened, By Lesley
Name: Lesley Neuroendocrine Cancer Site: Bowel, Liver Hospital: Royal Free - My name is Lesley Porch and I currently work full-time as a secondary school support teacher and pastoral care...
Living with Stage 4 Neuroendocrine Cancer – Restoring Resilience, by Angela
Name: Angela Neuroendocrine Cancer Site: Ileal, small intestine with metastases in my liver, ovary, and pelvic nodes. Hospital: Southampton - Cancer has been part of my life for many years. Both...
Compassion Fatigue, by Polly
A ‘carer’s’ experience is not the same as a patient's. It can’t be. But the fallout from the stress and anxiety can be just as overwhelming. There have even been times when I’ve experienced both...
My Lottery Win, By Gary
Name: Gary Neuroendocrine Cancer Site: Small Bowel Neuroendocrine Tumours with Liver Metastases. Hospital: Southampton General Hospital - - My name is Gary and I was diagnosed in March 2023 with...
Having a Cancer That No One Had Heard Of, Carolyn’s Story
Name: Carolyn Neuroendocrine Cancer Site: Bowel Hospital: The Royal Free - Carolyn's Story My name is Carolyn Evans, and in August 2005, I was in hospital recovering from bowel surgery when a nurse...
From Business Analyst to Caregiver Advocate: Polly’s Story
I’m Polly, 68 years old. In a former life I was a Business Analyst and IT Project Manager. Taking early retirement in my late 50s, it was to be a venture into the unknown but what followed was not...
Having Neuroendocrine Cancer is a Full-time Job, by Caroline
Name: Caroline Neuroendocrine Cancer Site: Colon. - My name is Caroline Griffiths and I’m 56 years old. I live in Port Talbot with my husband and daughter. I also have a son and a beautiful grandson...
PRRT Funding: Michelle’s Story
Name: Michelle Neuroendocrine Cancer Site: Primary: Adrenal gland with secondaries in lungs, liver, and lymph nodes behind the aorta - - Michelle's Story I have suffered for years with sweating,...
Newly Diagnosed, by Marie
Name: Marie Martin Neuroendocrine Cancer Site: Pancreatic Primary - I’d rather not be writing this story but it might help others - it's hard to find out anything straightforward about...
Finding Strength in Community: Carole’s Neuroendocrine Cancer Story
Carole's Story Neuroendocrine Cancer Site: Pancreas Hospital: The Christie, Manchester Carole Shaw, also known as Carole Wickets, reflects on her journey with neuroendocrine cancer and the support...
My ‘Friend’, CAPTEM
Written by Cynthia, neuroendocrine cancer patient. Neuroendocrine cancer site: Pancreas. Hospital: The Christie, Manchester. In June 2021, I was diagnosed with an 11cm tumour on the tail of...
Caring For a Loved One at Home. It’s All About Respect, By Sue
- Many of you will know or will have read my previous blogs about my husband Ian’s story and how living with neuroendocrine cancer and Carcinoid Heart Disease have brought so many irrevocable...