Rare : not widely known; not frequently used or experienced; uncommon or unusual. “The mantra of ‘hear hooves, think horse not zebra’ is greatly contributing to diagnostic delays and poor patient experience” says Dr Lucy McKay, founder of Medics4RareDiseases. “The...
Neuroendocrine Cancer UK’s GP Awareness Cards are an essential tool for raising awareness of Neuroendocrine Cancer and encouraging early diagnosis. By ordering and distributing these cards to your local clinics and GP practices, you can help make a real...
The pancreas is a large gland, that is located behind the stomach and joins the digestive tract via the main pancreatic duct. It has a number of different types of cells that are responsible for producing substances (enzymes, peptides, hormones) that play an essential...
In 2020 we asked for members of our community to share their experiences of care to date. The purpose of this survey was to consolidate and add to previous national and global Neuroendocrine Cancer (NC)* patient experience surveys and reports, to gain further insights...
Merkel cell carcinoma (MCC) is a rare, highly aggressive skin cancer, primarily affecting older patients, and thought to arise from the cutaneous Merkel cell, a neuroendocrine cell. The exact cause of Merkel cell carcinoma (MCC) is not known. Factors strongly...
